Update for Adults

 

Earlier this summer.

First of all, I want to thank all of you for the kindness you have showered on our family through words of encouragement, prayers, offers to help and your very generous gifts. We truly have the most amazing family, friends and school family!!You make each day brighter!

Olivia has been doing great tolerating chemo each week, getting her weight back up after a big drop the first week, and just generally being happy, silly Olivia. Here is where the BUT comes in. When we did the initial biopsy analysis they thought it was the more treatable Wilms tumor but they followed protocol and sent it to a lab in Ohio. We got the results on Friday that Olivia has the more rare and aggressive form of the tumor. One of the things with this rare diagnosis is that it lingers and can come back as other forms of cancer later which terrifies me.That poor kid can not catch a break! But as always with this thing, one day at a time.

 

She will start a new treatment plan called Regimen M, for those of you who like to do research.  This will add 6-8 weeks of treatment and be much tougher on her. We believe she will have surgery next Thursday/Friday and will stay in the hospital to recover and on Monday she stays in for daily chemo with multiple drugs and now weekly radiation. She will have the 5-day stays about 3 - 5 times, I think. I’m still getting my head wrapped around this new curveball. 

 

Thank you again for all your support! It has really helped us and most importantly, Olivia and Beckett. My heart's just not in it for a new chapter this week but I always try to post every Sunday by dinner. I am surprised how cathartic it has become for me to write these chapters and Olivia loves to brainstorm ideas. We have a special notebook that she bedazzled (of course) to write down our brainstorming sessions. It should be a sweet keepsake once she recovers. That’s all for now. Keep us in your thoughts and prayers and stay safe and healthy during these crazy times!

XO